theautismkidblog

This WordPress.com site is the bee's knees

MOVING HOUSE FOR ME AND CAMERON

IMG_7200

Sorry everyone ive been very busy with my new school and been working really hard . Moving house is tricky for kids like me with autism and even worse for my brother Cameron , I don’t know what other mummy’s have to do when moving house I can only say what my mum has to do , she calls it a military operation with damage limitation so I thought that the army was going to help us but mum said sorry the army are not helping on this move but if a squadron of soldiers turning up would be a dream and very helpful but Gail’s helping with her Big Van instead .

Some our stuff in the old house suddenly went missing , Me and Cameron didn’t mind as it wasnt stuff in our playroom and bedroom mum told me she was taking some stuff to our new house that we wouldn’t mind missing because I don’t like change but Cameron really can’t have any change which is strange because he’s smarter than me and knows what happens when you move house . mum said i am just as smart as Cameron and  we must not work out smartness with how someone can do maths and science there’s more to smartness than being intelligence , like mum knows people who are really smart but she said their not always smart in the way they talk to people and some people don’t care about their families and that really is not smart .

mum brought photos back of our new house on her phone and told me we had lots of different animals at the bottom of our garden and that we could see the woods were we use to walk our dogs . I was hoping i would have Giraffe’s and monkeys  at the bottom of our garden but mum said she thought I might say that so she had a picture on her phone of all the animals  we have Sheep , Goats , Rabbits  and a Cow .

mum took us to our new house and she had lots of her things there already stuff that’s not important to me and Cameron . daddy helped mum even though they don’t live together dad always helps with things because he loves me and Cameron so much , dad loves mum as a friend and mum said dad is always kind and will always be a good dad as he loves me and Cameron so much so we are very lucky . anyway we liked the house because it’s in chawton and we’ve lived in chawton before it’s a tiny village that is very old-fashioned some of the old houses have fake cats on the roof and when I was little it did worry me I thought real cats were stuck on the roof that happened once to our cat Tinkerbell , Jamie my cousin had to get a roof ladder and rescue her . jane Austen the writer lived here in chawton she’s the one that wrote lots of books they think she had aspergers like Cameron I don’t read her books they look very boring .

mum showed me a little room in our new house and said would me and Cameron like that room for our computers as she wont let us have TVs and computers in our bedroom she said it doesnt help with our sleep as I find it hard to get to sleep Cameron finds it really hard .  Cameron and me liked the idea of our own computer room .

the next day I went to school and mum said when we come back from school we will be in our new house , when I got home our bedroom was the same as at our old house I even had my Sydney harbour bridge photo up which I love as it has lots of detail all the different ships and boats and I see different things every time I look at this big photo its mums photo really but she gave it to me because i love it . it did make me feel better that everything in my bedroom was the same , also in our bathroom my tooth brushing picture was on the wall it shows me how I should brush my teeth as I find that tricky .

It took mum two days to sort her cooker out so we had a takeaway for two days one day I could choice and one day Cameron could choice so Cameron went first he wanted fish and chips he like’s loads of vinger, the next day I wanted chinese that’s my favourite food i always have the same things because I know what I like .  mum does say would i like to try something different but I don’t like doing that , me and Cameron know what we like so why eat something else . Mums always eating different things she said its quite nice to have a change ! Cameron said mum is a bit crazy like that , she doesnt think like me and him.  Cameron said she’s like India and blossom our labrador dogs they eat everything like mum but india wont eat satsuma’s  .

After a few weeks we now have a really brilliant computer room , I have a poster behind me of Sheldon Cooper my favourite person in the whole world , we have new chairs and theses amazing things to put our feet on they are so comfortable , Cameron has to have his feet on something because he can’t sit still , my feet need to be on something or I fall off my chair that’s because of my dyspraxia I do fall off a lot of chairs or I just knock everything off a table .

I love my new house and we are not every moving again for a very long time mum promised that and she doesnt make promises she can’t keep she’s good like that , Cameron hates people breaking promises when they break a promise he no longer likes that person mum explains to him people don’t always mean to break a promise but Cameron still doesnt like them . I just get a bit sad but I can still like that person , mum said I have a lovely forgiving nature sometimes too forgiving but she said that makes me a person with a shinning heart , this is wrong because hearts are not shining like yellow they are red with blood in them .

Cameron has found the move really hard and he done some bad things like he banged his head on the wall so mum moved the bed off the wall but mum said don’t worry Alex,  Camerons 13 and teenagers find everything hard  I do worry about Cameron because he can get angry and cries because he feels sad about being angry ,  I feel sad for him . mum said that’s his ADHD with his aspergers and when you’ll a teenager its like TNT in the game minecraft that explodes and we are not sure when that’s going to happen always .

we also have to keep Tinkerbell in that’s our cat she has aspergers like Cameron she also loves Cameron more she likes sleeping with him . she had to have a littler tray which Cameron said is the worse thing in the world its discussing but mum keeps it clean but the thought of it makes Cameron feel sick , mum said we havent got a choice as Tinkerbell being a cat has to get use to her new home before we can let her out , mum had to show Cameron this on the internet because he didn’t believe it was true , Cameron always believes google so he said sorry to mum .  Cameron is always googling google to find stuff out we laugh because mum said she had to do that in a library , I know what they are like because I have a library card that goes on a key ring its in Alton Cameron doesnt like the library because other people go there and he doesnt like other people , I like other people but you can’t talk in a library and that is hard for me because I love talking Cameron said my talking is an issue for him , mum had to sorry to me for laughing at that .  our dogs don’t need litter tray as we have a garden with a fence around so they wont run away mum has special bags to pick dog poo up they are pink and the bags are scented she hates it when we go for a walk and people don’t pick their dog poo up .

Next door Megan lives there and we know Megan and Megan’s mummy Zoe, She runs the cricket club in chawton she’s very nice and asked me would I like to play cricket again and they would like me to join in . I use to play cricket before and they let me stay in the same group for a long time because I don’t like change ,  martin the coach was always kind and nice to me and I liked him a lot . we know Megan and shes really funny and kind to me , Megan did live in our house with her mum , brother and step dad its sad Megan’s real daddy died  but they moved to the house next to us . My mum has Megan’s old bedroom and its bright pink mums changing the colour because she said even though its very pretty bright colour it doesnt match mums bedroom cover , mum has to decorate all the house Cameron doesnt like the smell of paint mum said its one of her favourite smells sadly there’s nothing she can do about Cameron not liking the smell of paint and she will only do painting when he’s at school with the window open .We also have to have get new taps because I cant turn them on very well and turn them off I cant grip the tap very well my hand slides its to do with my dyspraxia i cant do buttons on a shirt as well we practice but its hard mum said I will be able to do this one day that’s why I have a lady that does OT with me that’s means occupational therapy .   mum said look how lucky we are to live here in such a lovely village I agree with her . Camerons  very happy with his computer room when the blind is down as he doesnt like sunlight , we think he might be part vampire as well as vampires don’t like sunlight and vampires have some anger issues as well . mum said perhaps we should put that on his paper work part vampire I said its best no one knows as we don’t want him staked through the heart , mum said that’s well thought out Alex but vampires are not real we just are being funny about cameron .

Leave a comment »

CHRISTMAS TIME AND AUTISM

Hi everyone , this is the worst time of the year for my brother Cameron when he was young mum  told me all the dreadful things he done because he couldn’t cope and back then mum didn’t know how to help him . it would send him into sensory overload the christmas tree , decorations , us visiting families houses and people  coming to our house but because Cameron has ADHD and aspergers it makes him impulsive so he suddenly made bad choices ,  school at christmas time  Cameron still can’t do so he has a longer holiday . I hate school plays I don’t like ever wearing  dress up cloths  I have massive sensory issues with cloths I cant even wear soft fleece because it makes me fussy all over and my hair stands up it makes me shake all over .

  I love having a christmas tree so we have one but mum has no flashing lights on it thats not good for us and she doesnt have anything else . Relatives find it hard understanding us mum said when Cameron was young everything had to be green and if it wasnt he would just throw it on the floor he couldn’t help it but it upset some of the family then Cameron only wanted certain things and couldn’t understand why people would buy him something he didn’t want or need Cameron would just tell them or walk away upset . mum has taught me to look happy about something I get that I don’t want  . I have one auntie who always gets me the wrong things and I feel sad and annoyed but I do a happy face then mum takes it back or sorts it out for me ,  there are quite a few things I like but Cameron is one of those people who only likes one thing so it hard for mum to get presents but santa always seems to bring him something he wants . Santa must understand autism because Cameron’s never been cross with what he brings .

 We don’t have christmas dinner either because we need mum a lot during christmas day if people have popped by christmas morning I find it harder to act how people want me to act , Cameron doesnt care he sits in his playroom with the blinds down and wont come out , people visit him in his playroom but he doesnt like it , yesterday he went to the doctors with a bad ear and the doctor told Cameron he’s to stay home in the warm so when dad said shall we drop theses presents off boys Cameron reminded him what the doctor had said so I went with dad or dad would have been on his own .

we have christmas dinner on boxing day and boxing day dinner christmas day , the whole boxing day thing confuses me as well when I was young I thought people had to hit each other and didn’t like that day but mum said it use to be the day people would open their presents in boxes not on christmas day , mums best friend Clare Hearne use to open her presents on boxing day . I said  to mum if everyone opens their presents on christmas day why don’t they delete boxing day now , mum said I do have a very good point but everyone likes an extra day off of work . i am still not happy about it still being called boxing day but mum said there could still be families that follow this tradition she said she will phone Clare and see if they still open presents on boxing day .

Mum showed me a picture of a lady on Facebook that has a little boy with autism and he has just pulled all the stuffing out of her sofa , mum said the lady is very sad but the boy must feel very sad to have done such a thing , Cameron done lots of things like this he didn’t feel things in a normal way so he seeked the sensation like hitting himself and others it’s called a special name vestibular dysfunction i like words like that because i know what it means and other people don’t , cameron  becomes  over responsive  and he can do strange things that don’t make sense to everyday people . we understand him , mum said i am very good with Cameron because I understand more than any other little person she knows , in fact she said I know more than a lot of the mums  she knows that’s why i am lucky because i am an expert at theses things but a lot of adults wont listen to me , adults can be stupid , mum agrees with me but I must not tell them that . Cameron does tell them he hates people saying stupid things

 I love Santa but  I don’t like visiting the ones that are not real , kids with autism know because we see little details you don’t see , its one of our special skills we have with autism  its one of my super powers . we know their are  fake and Cameron use to tell them but now we wait for Santa to come Christmas Eve I want to stay awake and see him but I fall asleep every year .

It makes me sad sometimes when I think about the africa children at christmas so mum does shoe boxes with me and we fill them with little presents and that does make me feel better I always give some of my christmas money to africa when i am older i am going to work for the red cross ive been thinking about special solar panels Cameron’s friend tim his dad works on new special solar panels hes clever and works in america so mum said I could chat to him about my ideas for africa , Cameron doesnt think about all of this like me but mum said no two people with autism are the same.

 Perhaps some grannies , granddads and families might read this and understand why christmas is hard for people like us but it can be happy if people try to understand while helping the mums and dads . my mums christmas when she was little was very different to mine I wouldn’t like her christmas because she done lots of things like crackers , roast dinners , lots of family staying  , me and Cameron don’t like that , cameron also hates mistletoe  because he dosnt  like people thinking their can joke and kiss him , he is like alot like Sheldon cooper , sheldon doesn’t touch anyone . Dad said to Cameron if you have a girlfriend she might want to hold you hand  , Cameron ignores him .

thank you to everyone reading my blog and i hope you have a good and happy christmas from alex xx

9 Comments »

THE CINEMA AND FILMS HELP ME LEARN SO MUCH

Mum has always said the right film can sometimes teacher me more than she can , at home I like to watch the Big Bang theory all the time I never get fed up watching it again and again . Yesterday me, Cameron and mum went to watch Skyfall the new James Bond film it was friday afternoon so there weren’t to many people at the cinema . mum always takes us to the odeon cinema because it’s not in town and Cameron doesn’t have to mix or get confused by lots of people , he has a massive problems with this it’s called social phobia and with OCD on top everything becomes hard for him . mum has to get him prepared and ready , he will only go out if its something he really really wants to do but he knows mum never really jumps surprises on him she never forces him to do things . I am lucky I havent got bad social phobia like Cameron , mum said I am a little social butterfly , its one of those metaphors again ! I use to think she was saying i am a butterfly but it means I can talk to different people , I am trying to learn to talk to people about things they like but it seems impossible because I only like talking about what I like , so that part of me is just like Sheldon Cooper  but mum helps we have to sit around the dinning table , we play a game were we have counters and we talk to each other and if I mention big bang , minecraft and my plans for africa I lose a counter , Cameron is not allowed to mention skyrim and special effects in films , he likes to work out hows it’s all done he’s clever like that , I always lose the most counters . Well James Bond was brilliant mum loved his old Aston martin I love her so I will buy her one when I am rich , Cameron loved all the effects , M told James he made the best spy because he was an orphan  I did’nt know what that was so mum explained , I wouldn’t want my mum or dad to die so I could be a good spy and drinking too much made James Bond hand shaky so I decided I wont drink ever , Cameron once drank a small tin of pimms without mum knowing , mum told him his aspie brain is not that clever because he would have known to get rid of the evidence Cameron made a promise never to do it again ,  kids with Autism don’t lie . after the film we had a laugh in the car we said what we would have to do to be james bond , mum was laughing because Cameron’s a really good at shooting targets and he has the good looks but he wouldn’t be able to walk into all the places james goes because of his social phobia and he couldn’t just kiss any girl , we decided I wouldn’t have a problem kissing pretty girls that would be easy for me but  because im clumsy I would most probably fall and shot the wrong person or even shoot myself in the foot plus james has to lie and we couldn’t do that . mum said perhaps the spy business is not for me and Cameron . Cameron got in a bit of a state about the ejector seat in james bond car as he wouldn’t see how that can work because you would press the button and the person would just hit their head on the roof of the car ! mum explained if you had a soft top or the roof down it would work fine , I don’t know anyone i would want to eject , Cameron knows one person he would eject , mum explained  her list would be long .

4 Comments »

THE DENTIST WITH LAUGHING GAS IS JUST THE BEST

Hello everyone , I havent posted for a while so I have loads of catching up to do . As you all know by now I hate cleaning my teeth I don’t like the dentist this causes issues between me and mum , it’s the only thing she gets on high horse about that’s a metaphor for being grumpy and thinking you know best  . I am getting better at theses mums giving me training with Michael Barton’s  book .  Tim Cameron’s best friend  done a project at school about it and the book the curious incident of a dog in the night-time , Tim had to make up idioms and make a special book , tim wanted to show mum because he knows she’s proud of him for telling his class what its like to  have aspergers .  Well I have to see Jayne now because she’s the only dentist at my special dentist centre that can give laughing gas , Cameron has the irish man he’s really funny with red hair . He said to Cameron ive heard everything from children Cameron replied I am not sure about the Irish you are always baddies in films and I don’t know if I can trust you , mum told Cameron that’s not nice to say but Cameron then told her all the films were Irish people are baddies , of course Cameron was right . mum said its only films not real life Cameron and you have cousins that are Irish , Cameron’s list was long he knows everything about films his brain works that way  , but the dentist laughed and said no ones said that , and he’s from northern Ireland and they are all OK , Cameron said are you kidding they the worse ! . well Jayne put me in the chair and showed me the laughing gas thing that goes over your face and I had to do exercises in the chair which I thought was strange but I got some pins and needles in my hands but then I was floating it was amazing , ive always wanted to float and here I am floating I loved the feeling it was magic . I could hear mum laughing as I said I was floating I thought she would be worried about me floating but she was happy , its strange having your teeth done while floating  . when it was over I felt a bit sad about not having laughing gas and floating , Jayne said don’t worry I can have laughing gas on check ups . I asked Jayne about having some gas at home the bottles are only about 20 pound but the special equipment they go in are thousands and thousands , when I get home I am googling that . Jayne went through all the tooth pastes in her draw and I had tried everyone , she said even try to brush you teeth with water ,when Jayne does teacher training for other dentists i am going to be her pretend patient and I can have laughing gas .  mums got me a special jet wash for mouth she said she had to sell a kidney to buy it but she’s joking , Grandad had a kidney out when he got cancer  that makes mum sad because she misses her Dad but he’s with Brambles our dog in Heaven , we put Brambles in Grandad’s coffin because he loved her a lot , she use to drive around with Grandad in his van . Mum said we’ve  spent hundreds on different toothbrushes and toothpaste so perhaps it would pay for it self which really doesn’t make sense the jetwash paying for it self , it cant do that it’s not a real person !  but anyway it jets everywhere and ive jetwashed the bathroom mum said I have to do my jetwash over the bath as I cant control myself over the sink I got all the cotton buds wet , toilet paper wet , mirror soaking because I was watching myself jetwash my teeth. anyway Jayne loved me and she hugged me i am her favourite boy and she is going to watch the big bang theory because its my best ever programme and I love Sheldon who I want to meet , mum said if I meet Sheldon the actor he wouldn’t be like Sheldon sometimes mum is really silly it’s not like he wears a mask he will be just like Sheldon  . so if your kid is like me then find a dentist with laughing gas its the best and they wont worry about having their teeth done , mum said she’s not sure I should suggest the jetwash for your teeth yet until ive done a full trial and Jayne has seen my teeth again .

Leave a comment »

GREAT ORMOND STREET HOSPITAL IN LONDON TODAY

Well today we had to get on the train really early and my brothers best friend Tim had an appointment at Great Ormond Street too  so we went together because mum is best friends with Tina who is Tim’s mum . Tina and mum went to school together which is a very long ago , not when the dinosaurs were around but it was over 31 years ago , Tina and Tim just made it in time they nearly missed the train it worried me for a little while but mum said don’t worry Tina’s late for most things but always gets to places by the skin of her teeth , I know what that means now,  I use to think that sounded painful .

When we got on the train it was ok until a man asked to sit next to mum , I didn’t want him to sit there he had a mean face with a mean voice and told Tina to put her feet down . I asked mum to tell him to move  but mum said she couldn’t because it was the early train were lots of men catch the train so they can be in the office at 8 o’clock . I was not very happy about this situation .

When we got to London we got in a black cab to Great Ormond Street because I can’t cope with the underground , it’s just too much for my sensory problems I feel ill on the tube and then people stare at you and I don’t like people looking in my eyes and being close to me , it’s a autism thing that only we can understand but mum’s good and she listens to me what I feel I can and cant do . there are lots I can do . I didn’t talk to the cab driver in the morning I was thinking  about my tests and worrying about my left ear .

we got there we were early so mum said I could have a hot chocolate that’s my favourite , but this can all go wrong for me if they don’t get the temperature right . I explained to the lady behind the counter that I needed a certain amount of cold milk . mum lets me get on with things like this because I need to be independent . I tasted it when she had finished and it was the perfect temperature I told the lady this and offered her a job , her name was Mesely she gave me her Mobil number which I am not allowed to put on here .

Then we have to go to the audiological medicine clinic because I have problems with sounds and processing information that goes in my ear . I have problems with certain sounds I just don’t hear and if people have strange voices , it’s very tricky to explain to people . when I got there I looked for a lady that is blind she works there with her special dog , he gets her to work in the morning so she doesn’t kill herself in the London traffic which is bad , she talks to kids that have problems hearing and seeing and I love her dog we can stroke him , anyway she was there I just walked in her room and showed Tim and Tina the dog and we had a chat . I did ask how bad her sight was , mum just looked at me sometimes she rolls her eyes in the air like she’s looking at the sky but her she’s looking at me . anyway she explained she can see white if it’s on a black background .

While I was waiting I played knots and crosses with Tim on a special computer at Great Ormond Street they have lots of nice things for kids because they know we hate hospitals . then the lady that does all the tests come and got me because they had to do more tests on me as my left ear is worse , you go in a special room with two doors its sound prove , mum said we need one at home so no one can hear her scream ! she doesn’t scream very often only when she thinks me and Cameron might kill ourselves and somethings when she has a letter from the education authority then she can scream and throw her paper work down . when I had my tests she had to re-do some tests so I had another 20 things I had to listen to .

After that we had to see my proper doctor Dr Bamiou she has a funny voice but is very kind and has a nice face and good teeth so she has a nice smile . last time I didn’t ask her about her voice because I had so many tests I was a bit upset so this time I asked her about her voice , Dr Bamiou comes from Greece so she is Greek . I told her about  am going to one day buy a place in Greece were the mama mia film is made ,  I couldn’t believe it when she told me she had just got back from holiday there and it is the most beautiful place in the world , thinking about it all I like her lots now because she’s been to the island were I want a house . I know all the songs and the film makes me happy . she also answers all my questions and she said one day I will be able to laugh about all of this and she believes everyone should dream big like me .

I told her I was a school refuser and she was sad about that , then she talked to mum . the doctor said it makes her mad that they wont listen to her and mum about what school I need , when she has made so many recommendations that’s a list of thing people are meant to do but they don’t because they think they know better than a doctor . shes writing a letter she understands how complex i am and she understands my autism with my language problems . mum said complex isn’t a problem its gift because I see the world differently and that’s a wonderful thing , mum loves my way of thinking even when her eyes roll .

When we come out I saw tom , Carolyn and Mark  . it was good to see tom he’s a friend as well . Carolyn and Mark were brown from holiday tom wasn’t he doesn’t like the sun some of us kids with autism and aspergers can’t stand the sun because of our sensory stuff we can’t bear the bright light , we are not all like it but a lot of us are . me and tom played but then he was called in to see the doctor so I was a bit upset because I haven’t seen tom in a long time .

Mum took me to the food place in Great Ormond Street so I could eat something and wait to see how long Tim was going to be I had a small snack , they had really amazing chairs in there they were orange and turned around and around so I sat there for 20 minutes just turning around and around I love spinning lots of kids with autism like spinning its called sensory seeking but I just know I love the feeling when I’m stressed it makes me feel better so mum never stops me she never cares what people think , she always just carries on with what she needs to do and lets me do what I need to do .

Mark came into the food place for a coffee while tom was having his tests , then Tina and Tim came in and wanted something to eat , the restaurant  were doing proper hot food so mum brought me some chicken that’s all I wanted just chicken . we all had some food and sat with mark , I asked mark about did his iPhone have Siri it’s a voice that talks to you Rajesh on the big bang theory he had a relationship with Siri because he can’t talk to women but he could talk to Siri . I asked Mark lots of questions about stuff , he knows a lot about computer stuff mum calls him Mr Which because she can ring mark and he knows the best make and model to buy and where to buy it cheapest , he’s clever .

After me and Tim had been so good we went to the dungeons I wanted to go there , I got a taxi cab he was really funny and answered all my questions , in a cab you have a little window you can slide across so you can talk I decided I would talk to him . in the front of the cab there is only one seat for the driver he said people put their cases next to him , I asked him what does he do if he needs to go to toilet he said he goes in the hotels I suggested he could have a toilet in the cab next to him , Tim thought that was a good ideal as well and you could have a chain . we laughed about that , even the cab driver laughed I asked him how much he gets paid , mum said you can’t ask that , he said he was free all day and he would earn a lot if we wanted to go to Scotland but I wanted to go to the dungeons .

when we got to the dungeons we went straight in Tim was a bit worried because its dark and a bit scary , I wasn’t that scared . when we first got there me and Tim had to pretend to cut our mums heads off for a photo with pretend axes . it’s so so dark I got my iPod out with the torch on and Tina done the same on her iPhone for Tim . there are so many strange and scary things in the London dungeons its all about real history facts in London like the plague and London burning down , jack the ripper how they tortured people they had special things that cut men’s willies off . a lady made a man sit down and got the instrument  out they use to use to cut willies off , she said the man need a smaller instrument . I held my wellie but mum and Tina really laughed . we also went down to the bakers street were  Sweeney Todd killed people and lady put it in pies . there was things I liked and laughed about and there was things I didn’t like . me and Tim didn’t like the bit were you walk through flashing lights and there was a maze thing and walked straight into mirror  mum laughed and said be patient Alex  . it’s a bit like horrible history’s in fact kids should get to learn this way its far more interesting for us . when we come out me and Tim got fed up of walking so we got a river boat back to the London Eye that’s were Waterloo station is , that’s an Abba song as well .

Me and Tim had enough my now , we were going on the London Eye but we’ve been on it lots of times , but I saw a big swing thing along the embankment it was all I could think about it looked high and dangerous and it spins I had to go it was all I could think about I became obsessed mum said because it wasn’t far she would let me have a go but Tim didn’t want to so Tim sat down and we went to the high spinney thing it was £7 for one ride so mum let me have a go it was great I didn’t have to queue but I was a bit disappointed it wasn’t  scary it was just a good view of the House’s of parliament  and the London Eye  . mum said they are a bunch of idiots in parliament they have no common sense .

2 Comments »

WHY AUTISTIC CHILDREN CAN HAVE PROBLEMS WITH THEIR TEETH

Me and Cameron had to go for our check up at our very specialized dentist , the specialized dentist is more for me , I have really big problems with my teeth . My dentist who is Welsh is off having her baby I like her and it can be very annoying when this happens it takes kids with autism a long time to get use to some one especially if its something we don’t like .

Mum said its the bain of her life ,  people having babies or retiring and just when we find someone good that happens , Cameron told  me he can prove that to me by doing a statistics chart , his favourite person was Dr donald holt he retired , Mrs Crowe at medstead school  Cameron’s classroom assistant she retired , Mrs Taylor at liss school she left , Bob who was Cameron’s top person he was his taxi driver  , Bob fancied Mrs Taylor Cameron’s teacher , Bob  was really smart he would teach Cameron jokes because he knew Cameron didn’t have the sense of humour other people would understand and Cameron wanted to learn jokes to fit in . Cameron said life’s horrible sometimes because  he really loves  these people and they leave .  But he does know mum wont leave unless she gets hit by lighting or a lorry hits her in the car .

So anyway we had a new dentist Holly she was very nice and kind  , Cameron went first his teeth are perfect they are straight , white and he has no fillings he brushes his teeth really well in fact he’s obsessed with his teeth when he was younger he just pulled his teeth straight out , he doesn’t feel pain , mum use to have a hissy fit because she didn’t know if he had pulled one of his second teeth out  . In fact my Welsh dentist called him Mr Perfect she said it must be hard living with Mr Perfect ! we laughed she was being sarcastic I understand that now because of mum is the sarcasm queen she isn’t a real queen just the sarcasm queen and Sheldon from the big ban theory. Any way Holly took a x-ray of Cameron’s teeth as well , I think she wanted to find something wrong but she couldn’t .

Then I got in the chair it was green i like green , the lady that was helping the dentist was cleaning everything I asked her at great length about the way she cleans things I wanted to be sure there was no gems ! she picked a new end on the blow instrument she had different colours she picked out red which is one of my favourite colours at the moment so that made me feel better . I was getting worried so I asked a lot of questions , mum said Alex I know you want to know but the girl thinks she’s being interviewed by the CID  perhaps draw breath Alex , I started to think how I could draw my breath I had no pen and paper ! mum will say things like that to me it feels like a different language but I don’t mind because I love her and I know she’s NT so she can’t help it . I did tell her none of theses instruments would be here without  people with autism , we invent everything but we find it hard to brush our teeth .

The dentist Holly had to go very careful with me I don’t like people touching my teeth and I can’t bare the feeling on my teeth its feels like someones sticking pins in me , I need lots of things done because I can’t brush my teeth I try but can only stand a brush in my mouth for seconds . mum has brought me loads of brushes , small ones , scooby brush , electric brushes one with a tiny round head and another one with a very small brush on it , I also don’t like tooth paste mum has brought loads of them all different flavours . I cry when I brush my teeth mum tries to help me she holds my hand and  tries to take my mind off of things . it’s just impossible for me it’s so painful brushing my teeth . mum’s ordering me a jet wash for my teeth it jets out water people use it instead of floss .  when the dentist had finished she talked to me about my teeth , she didn’t tell me off because she understands kids like me find it really hard , I have something called sensory integration disorder mine is very bad I don’t feel and smell things like other humans . sometimes I don’t feel any pain when something happens to me and then if people touch my hair and teeth it’s really painful  also smells are different sometimes I smell things no other human can smell I am very much like my dog india , because the smell of things can be overwhelming like people who smoke and wear perfume I can’t stand it .

The dentist went through things I do and things I like the taste of  , I like strawberries I said mums brought me strawberry toothpaste and it hasn’t worked but the dentist  said tesco have brought a new one out that really does taste like strawberries so mum said we will go and buy it , anything to help me . we had to talk about my treatment we’ve decided on a special gas that makes you laugh , I thought she meant the helium gas in balloons that gives you a funny voice and you make other people laugh , but this gas is different it just makes you happy she said . if that doesn’t work then I will go to sleep and have everything done  . she gave me little pot of mouth wash I smelt it and was nearly sick , Cameron had it he loves minty stuff .

when we were in the car we had a chat about laughing gas , I said to mum why don’t miserable  people have this gas all the time ! mum said you have a good point and sometimes she could do with it for some of the people she has meetings with because they love being miserable that’s people who decide about my education , I told mum why would someone love being miserable . mum said some people are miserable because they really are sad about life and something really bad could have happened to them  we should help and understand those people but there are people who just moan about everything and they should go a live in africa with starving children and then moan about their life’s .

I just really wanted people to know how different it is for me and my brother , he’s obsessed with brushing his teeth and loves the feeling but I don’t , so if someone needs fillings doesn’t mean they are bad people they might be like me .

5 Comments »

WHY BUGS AND SNAKES MAKE ME FEEL GOOD

Today mum went to the hairdressers , she said her roots need doing  I can’t see any roots on her head , but she told me to look at all the grey hairs , I did but I could only see some white hairs I really couldn’t see any grey ones . I asked mum why do you get white hairs , she said its all to do with Cameron’s court case about his school and a few other things and that one day when she’s has got time , she will take it to the european court of human rights ! I didn’t bothered asking anything else , mum said was I sure I didn’t want to come with her , because the girls at the hairdressers like me , last time there was an old lady having her hair done and I said the girl hairdressers you should let the old lady have her hair done for free because i am kind , the old lady agreed . I told them all about how I want to work in africa with the red cross with all the poor and staving children , I think about this a lot , mum said trust me Alex everyone knows you think about this a lot , but they cant because they don’t have to power to read my brain yet , no one does , I know someone with autism will invent this one day. the girls think i am funny a lot of people say that about me , I don’t mean to be funny but I do like it when people laugh it makes me happy I don’t like people fighting . I stayed home , dad was with me  we mowed the lawn dad let me have a go because he knows i am very practical , I had to wear wellies , dad said don’t tell mum but then he looked at me and said I know you will , he knows I cant tell lies . we had to full the wheel barrel up with all the grass , dad gave me a ride I love the feeling and made him go fast then he tipped me out which made me laugh . I never liked the sound of the mower when I was little but i am ok with the mower now . what was really exciting was I found a frog and called him george , I have a special bug pot and put him in it , dad said I could hold onto him for a little while then we must let him go so he can find his family  . I got my bugs books I have a lot of bugs book , I use to carry them everywhere I don’t do that anymore, only when I find something interesting that I havent seen before , it got even better because I found a slow-worm , he was really cute and he was a tiny one I picked him up , dad said it was ok because he was a slow-worm but when I lived at our other house mum screamed because I tried to pick an Adder up , they have poison in them  . I was going to show the Adder to louis and Sonny but mum said their mum would not like it because they are only very young and if  an Adder bits a small child or dog they can die . well I didn’t want the Adder to kill Sonny , louis , India or Blossom . years ago I thought I would work with Steve Backshall , Steve loves all animals like me and has a programme called deadly 60 , mum said people who work for the education authority should be on steve’s deadly 60 list because they are really poisonous attacking their prey . when mum come home she was excited about my frog and snake and we had a chat about not picking up any snakes unless mum or dad have said its ok , she said the girls in the hairdressers said hello and she was talking to another mummy who has children like me , and the girl who dried her hair had dyslexia and things were hard for her at school and she used dragon technology like me so she could write like me , dragon technology isn’t a real dragon its a programme that understands my voice and types out what I say so i can do anything i want to . i bet someone with autism invented dragon technology , mum said she would google it and find out .

THE PICTURE IS OF MY HAND AND THE FROG I FOUND TODAY CALLED GEORGE

7 Comments »

KID’S LIKE ME HAVE TO SEE PSYCHIATRIST SOMETIMES !

On Friday I had to go to CAMHS again , at CAMHS sometimes I see a special nurse called Felicity and sometimes I see a psychiatrist called Alison really she is a doctor for my head , they can’t fix heads by talking to you , that’s just stupid . I told Felicity’ I am fed up coming to see you because  I get upset ‘ . Felicity said she didn’t want me to be upset , but she talk’s about my old school and it upsets me and how I can go back to my old school for a while , mum talk’s to me about it but I take all my skin off my toes and hide under my bunk bed . Cameron use to do worse things to himself its called self-harm , he doesn’t do it any more because he’s at a good school . Felicity said she thought it was a good idea if I could stand up against bullies and when i am older and go to work their might be bullies but i am going to work for the Red Cross when i am older and people who work for them are kind like me so I can’t see that will happen , but I don’t like hitting people , Cameron would hit them for me  he loves me , Cameron use to hit people if they got on his nerves he hasn’t hit anyone  at his new school he’s been there for 2 years , mum went to court to get him in his school and she won . mum kept calling Felicity Emily ,I had to tell mum every time she got her the wrong name , I don’t like things wrong ,  mum’s always doing that . Emily is a lady that is meant to sort children out that don’t go to school she turned up on our door step with another lady mum wasnt happy she was cross , they went away and mum said that’s great she’s never met you and she turns up with her side kick a side kick is a super hero friend a sidekick can’t do anything they don’t have super powers , I asked mum if Emily was a super hero ! , she said she’s super havent got a clue , I know it’s another metaphor   . Felicity said I have to learn to cope with people who are bullies I told her’ I will when I am 13′ , mum said it is good idea to learn how to deal with people who are not nice , I told mum as well I will when I am 13 . I told felicity my inner devil hasnt evolved yet , she laughed a lot . Cameron’s inner devil was evolved when he was born I asked felicity if her inner devil was evolved she laughed again , we all did start to laugh a lot , felicity said I was the funnest boy she had ever meet and that I was funny without trying . I really started to like felicity today because we done lots of laughing , I told her when I am rich I might give her a job and said I would give her better money than she gets now . I was quite happy when I left their today .mum took me to see sue , Sue is lovely she’s like a nanny to me , she had the film John Carter for me so I was really happy  , she asked me what I wanted to drink I said coffee , mum said Alex will have juice . Sue’s daughter Jackie came back home , I liked her straight away we talked about horses , she loves horses but has a bad knee , Jackie’s going to be 30 she has problems like me I said she could come and live with us as well as Sue , and I will buy her a horse and some donkeys , Jackie said she will look after them and pick the poo up , she likes doing that , Jackies like me she tells the truth , she’s really smart shes met Stephen Hawkins in real life we laughed because when she meet him and she fell asleep  she said he can be boring , Sheldon fainted when he meet Stephen Hawkins , we laughed about that , I know everything about Sheldon his IQ is 187 .

1 Comment »

THE DOCTORS SURGERY IS NOT VERY SUCCESSFUL FOR ME AND MY BROTHER

Mum had to get Cameron’s prescription today and I went with her because i am just to young at 9 to stay home alone , of course I wouldn’t be alone because I have two dogs but it’s not legal to leave children with dogs so mum said . mum had phoned them in the morning so she could just run in and pick it up but it all went wrong I nearly went into full-blown melt down , I have said before you don’t melt that would be just stupid but how you feel inside is a bit like melting because I can feel myself falling to pieces inside and I can’t stop it it’s really upsetting . when we went to the desk there was a problem because they couldn’t find the prescription and mum needed it for Cameron , she doesnt normally run out but Cameron had to have one of his old medicines because he’s a teenager , it took ages then the lady had to go off then came back with the wrong one ! mum had to again ask for Cameron’s older medicine so we had to wait for over half an hour , I was starting to feel a little bit stressed then the lady came back and said the doctor needs to see you . so mum said ‘Alex I really need this for Cameron i am really sorry we have to wait ‘ so we went and sat down and it just started to get too much people were going into the doctor’s office and it wasnt us , there was two babies crying and the noise was getting on my nerves , then there was a really old man I felt sorry for him because he was really old but then he started tapping his walking stick on the floor then I didn’t feel sorry for him anymore , this went on for another half an hour   I was getting really upset . when I get upset I try to regulate myself it’s like trying to reset a clock to the right time , this is really hard some autistic children hand flap and spin too but I rock back and forth to help me , it was getting so bad with all the sounds I started to rock , it wasnt making me better so mum got up and asked the lady how much longer , mum said ‘ Alex I can see whats happening we are just going to go this room next door with no one there , I was rocking and crying now and felt people looking at me . when we went to the next room no one was there and I couldn’t hear the phones either , in this room they had a blood pressure machine I like theses machines because they go tight around my arm and when I feel bad things that are tight on me help , there is a lady called Temple Grandin she invented her own squeeze machine at college people thought she was mad but she was the most clever person there and when she was stressed she squeezed herself . I keep putting one arm in then the other but I had started to go to far in my meltdown , the doctor came out to find us and said he wanted us to go in his office , I asked him ‘ do you have one of theses machines in your office ‘ he said no , I told the doctor I couldn’t go and he looked at me strangely , people say we can’t read faces but we can sometimes its harder for me . when he looked at me strangely ‘ I was nearly at full melt down inside I told him ‘ I can’t stand it , babies crying , walking stick tapping , phones ringing , waiting nearly 2 hours , don’t you understand what its like for someone like me with autism you are a doctor ‘ . mum didn’t say anything when she dosn’t  saying anything I know she agrees with me , she always will say the truth comes out of babies mouths which is just ridiculous because babies cant talk so they cant tell the truth or a lie , but its one of those strange metaphors again , it really means babies and children don’t know how to lie  they are taught to lie , I don’t lie and i am 9 . mum told the doctor about Cameron and she said I think its 27 mg and the doctor thought it was 25 mg but I know mum is always right about this stuff he looked on Cameron’s records and it was 27 mg mum was right . I was crying and rocking still while my arm was in the machine the doctor said ‘ is this Cameron’ I told him ‘ no i am not and thank god Cameron’s not here , he would knocking everything over if he had to wait this long with all theses noises ‘. with that the doctor went off and came back with the prescription , why he couldn’t do that straight away . when i got in the car with mum , she gave me some water ,  we breathed together holding hands and counting our breathing , i was sweating all over my body and squeezing mums hand really hard . mum got me better again she’s good at that , she has had lots of practice with Cameron because he has ADHD with his Aspergers his melt downs are really fast he finds it really hard to self regulate , he will go from 1 to 100 in 2 seconds , i don’t it takes me longer and i can rock but Cameron cant . i am never going back there every again .

11 Comments »

I WAS REALLY UPSET TO TODAY , SOMETIMES PEOPLE ARE JUST MEAN !

Today after my lesson with Liz knight my lovely teacher who makes me feel good about my self  because I can work really well with her . we had to get some milk and bono’s for the dogs they are biscuits in the shape of bones and I think dogs like that .  There was a man who said to me ‘ why are you not at school ‘ I told him ‘ i am a school refuser ‘ because I always tell the truth , that’s something I can’t help but do , the man said ‘well whats wrong with you then ‘ I told him ‘I have autism and lots of other stuff and my old school is scary for me but I do like 2 new schools mum has shown me ‘ but the man was nasty and said ‘theres  always labels for you children to get out of everything and in my day I would have put you across my knee and smacked you ‘ . when people are mean mum lets me try to work it out because mum said I have to learn to deal with some things that are not nice  but mum has a scoring system of 1-10 and if she thinks someones gone over the number five she gives them a special card that’s says about autism , if they go over number 7  then she pulls me behind her and sometimes nasty things will come out of her mouth , but she said this is the only time it’s allowed ! . mum said some stuff to this man and he went on about war-time and mum said to him ‘ what a shame the Germans didn’t shot you ‘ it worried me because I know German people and I don’t want to shot me , but mum said ‘ Alex all Germans are like us and 99% are very kind they sadly had a one bad man  and they feel very bad about the war .   so I feel ok now , and mum said whats not to like they make very good cars . when i got in the car I cried because now i am thinking about all the bad stuff that happens sometimes . mum said ‘ I must not worry people with autism are smart and wouldn’t say something like that , sadly the rest of the world is still catching up with you ‘ but I said ‘ I don’t have people chasing me ‘ mum said its’ one of those’ s metaphors again , like I gave that mean man a piece of my mind but that just means I was angry with him , I didn’t give a real bit of my mind ‘ . Cameron had a lot of people mean to him and he’s always going to have bad memories , he has to see a doctor about the bad things that happened to him so I feel sad for Cameron because he might have those things in his head for ever because no ones invented a machine to wipe out bad things in your head , but mum tries to full it with good memories she said we will squeeze the bad ones out with good ones , she said s stuff like this but I know it cant be done . not long ago mum took us to meet a special man , who’s a real life Lego builder and we were with Chloe, tom and Carolyn , before we went to meet him and build some Lego we went into costa’s because I like their hot chocolate their was a man in front we ordered our drinks and Cameron said the shopman  behind the table thing is that mine , the shop man said yes . then Cameron picked it up and drank from the straw but the man in front of us said a really bad word but went to hit Cameron . mum pushed Cameron away and the man nearly hit her , she was a number 10  mad she put her hands up to  the man and said ‘what are you doing trying to hit a 12-year-old boy who by the way has autism ‘! she was shouting i didn’t like it because people were looking at us and the shop man didnt know what to do . The man said sorry to Cameron and mum , but mum we are not going to let him ruin our Lego day with Duncan . one man who lived near us told my mum that children with autism should be in Victorian homes , i thought bob meant we should live in Jane Austens house but i was wrong he meant something else . That day mum made me and Cameron go inside , she said to bob no wonder you wife left you and i hope you have a long lonely unhappy life , mum said other stuff but i am not allowed to say that . I told mum i am sorry you have to do all this stuff for me and Cameron , but she said we are lucky because we know more good people than bad people so she proved it by telling me hundreds of good people we know she knows i need real facts about theses things , so i am ok now .

2 Comments »